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simplysharron's Cancer BlogMarch 4, 2008
Yesterday I finally got the nerve to let them put me to sleep so I could make it through 3 hours in the mri tube to check my back from neck to tail bone. Today there is a deep burning between my shoulder blades which wasn’t here before. I’m sure laying in one spot so long didn’t help.I feel like I could help so many if only I could write “the rest of the story”. They have made so many mistakes I quit counting, I am just thankful to be alive, but realize I never intended on a life where I couldn’t work, even clean my house without a severe penalty of pain. Humor sometimes works so last time I saw the oncologist he claimed “We don’t make mistakes” he then handed me the lab read out from my mamogram for my remaining right breast,it read Mamogram of left breast. February 11, 2008
Well we know that is out but today my 12 year old was out of school and we actually had a full, fun, day with no thoughts of cancer. My breathing is a strggle but I try not to make it part of our life, I thank God for today and hope for many more. Thanks for listening. I know that the big C is a money making industry and I also know I chose this course to live to see my child grow up. Although my surgeon actually cried with me when they said I had 6 months. Then it was 5 years, now it is as if they never said those things, the past is the past and I should forget what they tortured me with and go on. But I don’t want to let them off so easily to have their cure rate up. Or their insurance rate down. They care for themselves and we are simply numbers, or cattle to the trough. I am extremely angry and feel I have to do something after the doctors and played with my head so extremely. For example “Tell me if you have any symptoms, because you are a stage 4 and anything could mean something” Next visit, you complain each time about something. My answer was I am just telling you what you told me to.How can I make them listen. They work for me, I am not their 3:30PM patient to get out at 3:35PM I am sorry you have had such a rough time. I have taken chemo twice, once in 1994 and again in 2005. The chemo in 1994 was much, much worse than in 2005. I was 52 and my girls were juniors in high school in 1994. How bad it is mainly depends on what chemo drug you take and how much you take of it. My first 2 treatments in 1994 were high-dose Adriamycin and Cytoxan. I had a blood clot in my right arm and they put me on Coumadin so they had to decrease the amount of the Adriamycin and Cytoxan. I also had to have blood transfusions after each treatment except for the first and the last in 1994. I know cancer is scarey and it is awful but try to hang in there for your daughter’s sake. My thoughts and prayers are with you. Joyce February 8, 2008
Quality of life has so much more meaning when you are limited to so little. That includes mentally as well as physical. February 7, 2008
I am in “remission” from stage 4 breast cancer. Although I am still on femara. I have had a most unpleasant experience and am told time and time again that it is normal.I have not strength,constant pain, and a large hole in my chest that either seeps blood or other unnatural substances. Does anyone else experience such a thing? Sharron – I haven’t heard of a situation like yours, but someone here might of. Have you tried a different doctor? Yes I have asked at least 10 doctors, but interesting enough my supposrt group has not experienced the same nor heard of it. Hi Sharron, Ray here,, was wondering how everythind is going… I don’t just to hear from you when times are tough, but I also would enjoy hearing from you when things are also going well. |
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I am sorry. I know it has been so tough on you. I understand how you feel. I have been disabled since the age of 53 from the effects the Adriamycin did to my heart muscle. I feel sure your daughter would rather have you there like you are than not at all. I know it was hard on my 2 girls and they were juniors in high school. I hope you will be able to write the “rest of your story” one day. I hope you will get good news from your MRI. My thoughts and prayers will be with you and your family. Love and hugs, Joyce
Sharron, I really am sorry to hear about what you have been going through and when someone tells you that we don’t make mistakes, that is the time to start worrying about them… I haven’t read all of your profile so I don’t know what type of cancer that you have… maybe it would be time to find a new oncologist. I am saying this because I have lung cancer and on the lump node that is attached to my asophogas.. (i know that I didn’t spell it right but that is after the fact) I have 2 oncologist, one for radiation, and one for the chemo,, and i must say that they are more than doctors to me.. they are what we call true friends
and I only have God to thank for that.. i will start praying for you the the problems that you are having for to me there truly is only one great physian and that is God.. mind you I know that He uses the people here on earth but some listen to Him and others do… I don’t know where you stand and I accept where you are right now because i believe that He has you right where He wants you.. as for your pain, well I found that thanking HIM for everything even the pain and I try to turn that pain over to Him. Know what I find that it works,, the pain may not go away totally but enough that I can endure whatever I have.. You may find this silly, but know what it truly works and the more you believe it the better it gets.. God is not a God of pain but instead a God of love… if you have a Bible read John 15: 11 to 17.. God bless you girl.. and may the Spirit be with you always… Ray
I agree with Ray. You should change your oncologist. You shouldn’t have to be afraid to “write your story”. There are wonderful ones out there that are good true friends to you as well as doctors. I knew going into the Taxol study that the Adriamycin could damage my heart but I chose to do it because I wanted to live…any way or in any condition that I could. After the 2nd high dose treatment I got a blood clot in my right arm. They had to put me on coumadin, take me off the taxol study and lower my doses. I will always believe that God allowed the blood clot to happen so they would take me off the high doses. I don’t believe my heart could have stood the full treatment of the high doses of chemo. I do know that I could not have made it through the last 14 years without God in my life. When I get so low I can’t go anymore, he picks me up and carries me through. My faith in him is the only thing that has kept me sane. It is hard to do but I try to thank him and praise him every day for just being here. I will be praying for you and will be here for you in any way I can. Love and hugs, Joyce
For those brave and kind souls that spoke to me regarding the difficult but not impossible situation I am in, thank you! I do pray only with prayers of thanks and have for many years. I have put it in God’s hands but sometimes the pain prevails to the point of me not being able to funtion on any level. I read your posts over before leaving today to go to the oncologist, the whole time thinking “I just had the MRI on Monday, he never has the results of any tests when I go in, I should make sure it isn’t a wasted trip” I mean serious doubts and I had driven towards downtown maybe three miles when my husband called to tell me he was getting to work late. His overtime has been recently cut off and with me not able to help us financially it has put a strain on everything. It was like with all our prayers attached, God instant messaged me to come home call to make sure they had the results and tell them the truth I could not go because my husband had to work and I had to be here when my son came home from school. I nicely added that I hoped that would give the doctor extra time to have the necessary results when I was rescheduled. So again thanks, I have found bloging helps so much to understand what is happening to me, with a little help from others. Yall are the best.
Anytime your feeling down, or negative take the time to look at this
What Cancer Cannot Do
Cancer is so limited….......
It cannot cripple Love
It cannot shatter Hope
It cannot corrode Faith
It cannot destroy Peace
It cannot kill Friendship
It cannot suppress Memories
It cannot silence Courage
It cannot invade the Soul
It cannot steal Eternal Life
It cannot conquer the Spirit
Hi Sharon: I was reading your bloc, the one you posted on Feb. 12/08.. and it made me angry how there can be people out there who do not know what compassion is.. Do you mind if I asked you where you are from… I live in Calgary Alberta Canada, and the first time that I went to the hospital to see the oncologist, first thing they said to me is “you have your own team, anything you want to know ask us, no matter whether it is day or night… My oncologist Dr. Cindy Card even gave me her cell # and said call me anytime.. and once I did call her on her cell, they were out having supper at the Keg, and were enjoying lobster, what I am getting at is the fact that no matter what she was doing I was more important..
That really struck a special moment for me to realize that.. Anyway I just thought that I would share that with you in hoping that it might uplift you.. for we all need to be uplifted and thanked now and again… and I want to take this opportunity to thank you, for allowing me to enter your life, Friendship has to be one of the most important things on earth… Accepting one another and where we are is even more importan.
Thank YOU…
Sharon, I really hope that something I say or do can be a help to you and can give yuo encouragement. It really did help me to talk to other cancer patients and survivors because they understood what I was going through. I think it was hard for my family to listen because they were so scared and they really didn’t understand like another cancer patient would. Just remember…I will always be here for you to listen or do anything to help that I can. My love and my prayers are with you always. Love and hugs, Joyce